Here We Go Again…
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My friends on Plurk will know I have been having problems with my mobility and have been in quite a bit of pain recently. I was diagnosed with Fibromyalgia in May 2007, but my rheumatologist at the time Dr W was just pathetic. He kept telling me that I was in pain because I was depressed and offered no advice on how to manage my condition. I stopped going to him in July 2007 and tried to deal with the fibro on my own.
A couple of months ago, I was ready to try going back to a rheumatologist to help properly manage my condition and I was referred to Dr M. Today was my first session with her. She was amazingly thorough, asking me heaps of questions about my symptoms and did a complete physical including some neurological tests.
However, the outcome of those tests is that we are back at the beginning to try to work out what is wrong with me - the “It might be lupus” phase as I like to call it. All autoimmune diseases are back on the table along with muscular disorders closely followed by neurological disorders and because all the letters from old rheumatologist say I am depressed, mood disorders as well. I had blood and urine tests done this afternoon and I have to go and have a chest x-ray for some strange reason. I am really not sure what a chest x-ray is supposed to show. Depending on the results of those tests, certain other tests will follow.
In the meantime though I am on a multitude of drugs. Turns out that Dr W gave me the wrong instructions for taking my current medication which helps regulate my sleep cycle. He told me to take it at bedtime, so I took it before brushing my teeth and heading to bed. I am supposed to take it 2 - 3 hours BEFORE my bedtime, which explains why when I wake up in the mornings I feel absolutely exhausted as the drug is still coursing through my body and telling my body I am supposed to be asleep. Also I got a lecture from Dr M about not experimenting with my dosage of medication. When is the last time you heard a doctor asking you why you didn’t try taking more tablets? It was a very surreal moment having her tell me off for not taking more drugs and also for not trying out other drugs to see if they worked.
So now we play the waiting game. If my blood and urine tests come back with some interesting results I will be called in, but if they are normal I need to wait until October to see her again. I have also been referred to a physiotherapist who uses Feldenkrais to help me with my mobility and general movement. Has anyone had anything to do with Feldenkrais? It sounds kinda wishy-washy to me, but the physio works at the pain management centre so maybe there is something to it after all.
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June 24th, 2008 at 9:46 pm
[...] Here We Go Again… All autoimmune diseases are back on the table along with muscular disorders closely followed by neurological disorders and because all the letters from old rheumatologist say I am depressed, mood disorders as well. I had blood and urine … [...]